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©2019 Desmoid Tumor Research Foundation. All rights reserved.

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Welcome to the RFA Blog

Follow our journey to race day!

September 4, 2019

The DTRF reached out to board member and desmoid tumor patient Rachel Sitta, who has participated in and fundraised annually for Running for Answers since 2014. Rachel has been a leading fundraiser since she started attending the event so we asked her for some suggestions.


August 19, 2019

Since 2012, RFA has featured a special annual award given on race day to one special caregiver.

We are currently accepting nominations for The Richard Firely, Sr. Caregiver of the Year award. To nominate your caregiver for this award, submit a 100 word essay to us by September 1...

August 12, 2019

We're less than 6 weeks from race day and it's time to begin fundraising!

Below are some helpful hints for how to encourage giving in your community.

Host a fundraiser. Whether you decide to put on a beef n' beer, silent auction or bowl-a-thon with your closest friends, hosting a...

July 30, 2019

Can't make it to Philly to be with your fellow unicorns for the DTRF events this September?

Interested in being an advocate by spreading the word and raising awareness for desmoid tumors anyway?

Open to sharing virtually?

Become an RFA Virtual Participant this August and be eligib...

July 30, 2019

Whenever we share ideas about RFA team spirit, we always bring up Team Margie. 

After Margie was diagnosed with her desmoid tumor, she found the DTRF and decided to set her sights on participating and fundraising for RFA - the Foundation's largest fundraiser. Margie reached out...

July 17, 2019

When Christina started the journey with her desmoid tumor, she reached out to her community of loved ones for support. She began sharing her story on a personal blog ( and connected online with other patients.

When fundraising for RFA, Christina cast a w...

July 11, 2019

Fundraising through Facebook has been a growing trend recently and we've found that fundraisers have had great success is achieving their goals by creating and sharing Facebook campaigns.

If you're looking for a way to fundraise prior to RFA, this is a great way, especiall...

July 8, 2019

Keep in mind that we're less than 3 months from race day. That means if you haven't started your fundraising, it's time to start moving! The perfect time to start is right after you get registered.

Before approaching your networks, you need to formulate "your ask". Instead of ju...

July 1, 2019

A few weeks ago, we spoke with a fundraiser who planned on approaching her employer about making a donation to DTRF. She was happy to share that her ask was met with a resounding "yes!"

We wanted to highlight a few components that helped make it successful.

1. She made it pe...

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