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Take your first step to join us!

Follow these steps...


» Step 1: Save the date

Commit to join DTRF and patients from all over the country for DTRF's Annual Patient Meeting on September 21st and Running for Answers 5K Run/Walk on September 22nd in Philadelphia.


The DTRF Annual Patient Meeting is the premier patient education event hosted by the Desmoid Tumor Research Foundation. Featuring talks by expert researchers and clinicians from around the world, the Patient Meeting offers you the chance to learn about recent cutting-edge research and the best treatment options for desmoid tumors. 


Many patients share that their favorite part of the Patient Meeting is connecting with other patients with similar tumor sites and common journeys.


The day after the Patient Meeting, you'll rally with your friends and family, along with new friends at the Running for Answers 5K Run/Walk!


After leaving RFA weekend, you will feel more empowered through education and connection.


Learn more about past Patient Meetings and check out our 2019 weekend schedule.


» Step 2: Register

Sign up for the DTRF Patient Meeting and RFA!


They're best together and if you register here, you can sign up for both events at the same time! Learn more about registration fees and fundraising here.


» Step 3: Recruit your team

Become a team captain and exercise those advocacy skills! 


Read up on fundraising and recruitment strategies.


» Step 4: Plan your weekend!

Begin planning your weekend in Philadelphia! 


Do your research on Philly! Book your hotel, check out favorite restaurants, and learn more about the City of Brotherly Love.



Need help?

We're an email away. Contact us.


Can't make it to Philly?

Join our nationwide team of virtual RFA participants!


Get connected virtually by becoming a virtual RFA participant. Learn how you can spread the word about our community efforts and raise funds for research here. Raise $200 and receive a thank you from DTRF.


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