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Take your first

steps to join us!

Follow these steps...


» Step 1: READY...

Register to join us (virtually).


REGISTER to join DTRF and patients from all over the world for DTRF's Together We Will Virtual Weekend from September 25- 27, 2020. 






This FREE virtual weekend is the premier annual patient education event hosted by the Desmoid Tumor Research Foundation. Featuring talks by expert researchers and clinicians, along with networking opportunities, these events offer you the chance to learn from leading experts and connect with others in the community.

This year, we'll be hosting all events virtually!  


» Step 2: SET...

Design your personal challenge and become and advocate for desmoid tumor research. 


The RFA Virtual Challenge is the perfect opportunity for you to contribute to DTRF research efforts and become an advocate for the cause. 

After registering...

  • Stop by your email to pick up your "Claim my fundraising page" email

  • Create your RFA fundraising page. Set your personal fundraising goal, and set a personal goal for yourself at the same time. 

***IMPORTANT: Read more about how to automatically use your fundraising page to create a Facebook fundraiser here.***


» Step 3: GO!

Begin your challenge and fundraise for research!


  • You've made big decisions, now start moving toward your goal.

  • Ask loved ones to join your team by making a gift to your fundraising page OR ask them to register to fundraise themselves. 

  • Join our accountability Facebook page, the RFA Challenge Chat for support and community.







Need help?

We're an email away. Contact us.


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