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Registering for the DTRF Patient Meeting & RFA 


DTRF's Patient Meeting allows patients to learn about the latest research efforts, approach expert specialists with questions and connect with other patients. 


Date: Saturday, September 21, 2019

Location: DoubleTree Hotel- Center City Philadelphia, 237 S Broad St, Philadelphia, PA

Registration: 12-1pm

Patient Meeting: 1-6pm


We strongly encourage and ask each patient and caregiver to fundraise $300 each for DTRF as your cost of admission to 2 events: Meet N' Greet and Patient Meeting, Running for Answers 5K.


Upon registering, each participant will be able to create an online fundraising page to raise these funds. Your online fundraising page will help you fundraise the $300. Learn another way to help raise these funds!


Attending the DTRF Patient Meeting gives patients and family members the opportunity to hear from the experts and learn about the most current treatment options and research.


"I just wanted to tell you how helpful and moving the DTRF Patient Meeting was last year. The four doctors that presented did a wonderful job in giving an overview of the disease and current treatment options... The most important thing that they imparted was HOPE."

- 2016 Patient Meeting Attendee


The talks include a question-answer period where attendees can submit questions.  Following the talks, there is time to mingle, share own stories, learn from each other and ask the experts more questions.  This has been the highlight of the event for many attendees.


2019 Patient Meeting speakers TBA. Follow DTRF on Facebook for updates on this year's meeting  and learn about previous DTRF Patient Meetings here.

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