Together We Will... CONNECT
Friday, September 25th
DTRF Virtual Community Networking Event (via Zoom) from 8-9pm ET
8pm EDT/ 2am CEST/ 7pm CDT/ 6pm MDT/ 5pm PDT
This one hour structured networking event is a great opportunity for patients and caregivers to see and hear each other live.
Together We Will... EMPOWER OURSELVES
Saturday, September 26th
Two One-Hour DTRF Patient Meeting Webinars
Patients and caregivers are invited to join us for TWO one-hour back-to-back webinars. Learn from our panelists and participate in the Q&As. Both of these one hour webinars will feature presentations on key topics relating to desmoid tumor patients.
Patient Meeting Webinar #1 (via Zoom): Desmoid Tumors 101
11am EDT/ 5pm CEST/ 10am CDT/ 9am MDT/ 8am PDT
Featured topics:
Collaborations with patient advocacy groups with Dr. Mrinal Gounder, Memorial Sloan Kettering Cancer Center (Scientific Director, DTRF)
An overview of desmoid tumors with Dr. Breelyn A. Wilky, University of Colorado
Pediatrics with Dr. Aaron Weiss, Maine Medical Center (Chair, DTRF Medical Advisory Board)
Pregnancy with Dr. Chandrajit Raut, Brigham and Women's Hospital and Dana-Farber Cancer Institute
Patient Meeting Webinar #2 (via Zoom): Therapies and Clinical Trials for Desmoid Tumors
12:30pm EDT/ 6:30pm CEST/ 11:30am CDT/ 10:30am MDT/ 9:30am PDT
Featured topics:
High Intensity Focused Ultrasound (HiFU) with Dr. Matthew Bucknor, University of California- San Francisco
Intra-arterial doxorubicin drug-eluting embolization (DEE) with Dr. Eldad Elnekave, Rabin Medical Center
Nirogacestat with Dr. L. Mary Smith, SpringWorks Therapeutics
Tegavivint with Dr. Casey Cunningham, Iterion Therapeutics
Together We Will... FUND A CURE
July-September
THE RFA VIRTUAL CHALLENGE
We need YOU to take the Challenge! When you sign up for the Weekend, you will automatically receive an email to launch your own online fundraising page. The next step? Choose your RFA Challenge!
Sunday, September 27th
DTRF RFA Virtual Challenge Ceremony from 11- 11:30am ET
11am EDT/ 5pm CEST/ 10am CDT/ 9am MDT/ 8am PDT
The finale of the Virtual Weekend and our summer-long fundraising extravaganza! Awards will be given, patients and team Challenges will be spotlighted, and we’ll celebrate our community in the uplifting spirit of RFA.
