Talking about desmoid tumors

Sharing about desmoid tumors isn't easy. Many people have not heard of the disease and those who have may not understand its effect on day-to-day life.

How can you convey the gravity of this disease and encourage your community to donate or participate in RFA? Here are a few helpful hints about how to talking about desmoid tumors.


YOUR story. All desmoid tumor patients have a story to tell. Once you register as a live or virtual RFA participant, you can include your story on your fundraising page when you share it.

VIDEOS about survivor journeys:

BLOGS about desmoid tumor journeys: