Talking about desmoid tumors

Sharing about desmoid tumors isn't easy. Many people have not heard of the disease and those who have may not understand its effect on day-to-day life.

How can you convey the gravity of this disease and encourage your community to donate or participate in RFA? Here are a few helpful hints about how to talking about desmoid tumors.

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YOUR story. All desmoid tumor patients have a story to tell. Once you register as a live or virtual RFA participant, you can include your story on your fundraising page when you share it.

VIDEOS about survivor journeys:

• Lindsey Murray, Miami Heat Cheerleader

• Kevin Reilly, Motivational Speaker, Former NFL Player & Amputee

• Dana Pounds, Community Advocate & Above the Knee Amputee

BLOGS about desmoid tumor journeys:

• https://girlmeetscancer.com/

• http://travelwithmytumor.com/parmanu-intro/

• http://fightingdesmoidtumor.blogspot.com/

• http://desmoidtumorjourney.blogspot.com/

• http://krystleberrigan.blogspot.com/

• http://www.danapounds.com/