What happens if you can't make it to Philadelphia for RFA and the Patient Meeting?
You can still participate! Join RFA's nationwide virtual team! The resources on this page will give you everything you need to begin your journey! By participating virtually, you are driving DTRF's efforts and playing an active role in finding a cure for desmoid tumors.
RFA takes place in Philadelphia annually on the 4th Sunday in September. The 5K is a great opportunity for friends and family to rally around patients and caregivers who are tasked with a daily fight to stay on top of doctor's appointments, scans and drug side effects, along with daily life. It's so difficult to be a desmoid tumor patient for so many reasons.
Register on your own or recruit a team to join you!